Research
Digest
Issue Number 1
Measuring and monitoring
outcomes in community learning disability teams
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This study implemented and evaluated
a system of goal attainment scaling (GAS) in The Manchester Learning Disability
Partnership.
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It was possible for staff to set adequate
goals and to construct adequate scales to measure the outcome of work agreed.
However, the quality was variable, and many staff found it difficult to
make their work fit the measurement method.
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There was resistance to the use of
the method by some staff, and there was little evidence of the negotiation
of goals with users and their allies. These difficulties are sufficient
to cast doubt on the viability of the method.
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Staff report that the structure helps them
to improve the clarity and focus of their work and there is now a ‘discourse
of outcomes’ in the service that was lacking before.
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Substantial change was produced in
the majority of cases. However flaws in the measurement method means
that comparisons made using GAS scales could be confounded.
Measuring and
monitoring outcomes in community learning disability teams
The Manchester Learning Disability
Partnership has been researching ways of monitoring and measuring the outcomes
of work done by staff in community learning disability teams. This
has been an area where little work has been done in the past, in comparison
to the ‘hard services’ that provide a home, or day time care and support.
Routine measurement of outcomes in field settings presents a variety of
challenges, including:-
1) The heterogeneity of service users,
their needs, and therefore the desirable outcomes - even within specific
client groups such as ‘people with learning disabilities’.
2) The historical emphasis on activity,
or other process measures in such services.
3) The insensitivity of many global measures
of quality of life or adaptive functioning to positive improvement in key
domains.
4) Problems of validity and reliability,
especially outside a research context.
5) Professional resistance and potential
disagreement regarding the appropriate specification of outcomes.
We identified two types of measurement
strategy: a) the use of a broad brush measure of functioning or quality
of life, and b) an approach based on individualised goals. Rejecting
the former in this context as too time consuming and insensitive to change
in key areas, we used a version of the second: Goal Attainment Scaling
(GAS). GAS is based on goals set with individual clients. It
employs a method common to all goals to create a scale for possible outcomes.
This is done in advance, at goal setting. This yields follow up scores
that can, in principle, be aggregated and used to monitor and evaluate
service performance in achieving outcomes with users of the service.
GAS was implemented across the four large
community learning disability teams of the Manchester Partnership.
Findings
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The project encountered considerable implementation
problems. Only about 30 per cent of the expected number of goals
were set and scaled over the course of the project, and this reflected
widespread, although not universal resistance from staff.
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For all the disciplines in the service, there
were GAS enthusiasts as well as critics. Those that found it helpful
valued its help in increasing the clarity of their work.
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A combination of questionnaires and interviews
indicated that staff were satisfied with the briefing, training and guidance
materials provided. Their dissatisfaction reflected what were perceived
as a cumbersome method, that increased paperwork, and which did not fit
some types of work very well, particularly care management and psychological
work. Speech and language therapists and occupational therapists
were broadly receptive to the approach, with nurses’ reaction somewhere
in the middle.
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Goals set and the scales constructed were
assessed for their quality by a panel of raters. On most dimensions
a majority of goals were rated as being of at least acceptable quality
to at least two of the raters: it was concluded that the majority
of the goals and scales were at least usable for outcome measurement, if
not always of a high standard.
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The reliance on the managerial system for
the monitoring and progress chasing of the GAS implementation appears to
have led to some backlash, although there was little dissent from the principle
of measuring outcomes and improving the accountability to those that rely
on the service.
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The use of GAS did appear to encourage, over
time, the adoption of an ‘outcomes discourse’ in the service, at all levels.
Changing the service culture from a process/activity focus to a more outcome
focussed one takes time: despite the resistance encountered, this
project has contributed to a change of emphasis that continues after the
end of the original project. When alternatives to GAS were considered,
several staff groups were reluctant to abandon GAS!
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Because the GAS approach was chosen, then
implemented and evaluated within a funded research project, there was little
scope for involvement of staff in designing a method that best fitted this
context. This may have reduced the potential ‘ownership’ of the approach
by those who were expected to use it. However, this would apply for
any nationally implemented system of outcome measurement.
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The project also provided the service with
a clearer overall picture of the kinds of goals the community team staff
were working towards.
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GAS has been promoted as enabling user participation
in deciding what the service will do and evaluating its effectiveness.
Despite encouragement, there was little evidence of any attempt to use
the GAS materials in negotiation of goals with users and carers, and even
less in the evaluation of outcomes. Staff attributed this to levels
of learning disability, but the lack of participation extended to families
and support staff.
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Staff resistance meant that it was not possible
to systematically research the reliability and validity of the goals set.
When the method was discussed with carers they were supportive of the general
approach, but it was not possible to research their perceptions, or those
of users, in a systematic way.
An analysis of goals that had been
followed up indicated that the mean level of goal attainment was a little
over the expected level. Baseline levels were near the ‘floor’ or
lowest possible score. Average change was around two points on the
five point scale. This would appear to indicate that the community
teams were, on average, achieving what they set out to attain with their
clients. More change was achieved on goals that involved changes
external to the person than on those that were about individual changes
(e.g. in behaviour or health status).
Will GAS do the job?
Despite the attractiveness of GAS as
a common measure for all combinations of types of goal, worker, person,
situation, the research team suggest caution in the adoption of GAS in
the future.
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Because scales are anchored at the expected
level of attainment (the mid point), comparisons of attainment (e.g. between
workers, settings, or in terms of user characteristics) could be confounded
by the different expectations in each case.
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The data sets produced are also complex,
requiring types of statistical analyses that could be invalidated by the
properties of the data.
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Even if the measurement method was adequate,
a service would have to actually implement GAS to an appropriate standard,
maintain this implementation, and manage the data arising from it to provide
timely and meaningful reports to staff, management, and commissioners.
This requires a considerable developmental and managerial capacity.
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For reporting on the service as a whole,
an approach focusing on key performance indicators (e.g. number of out
of district placements, number of deaths from respiratory diseases, number
of holidays away from the district, number of people receiving direct payments)
might give more relevant information.
Future directions
The Manchester Partnership is now developing
discipline specific outcome measurement approaches. Rather different
approaches are emerging for each, some of which attempt to improve on the
GAS method, while others take an alternative approach. While complex,
this strategy might have an improved chance of routine usage, and will
better reflect the work undertaken.
About the study:
A variety of methods were used for this
study.
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Information on the implementation of Goal
Attainment Scaling was obtained through a combination of questionnaires
and interviews with staff at three different points in time. Researcher
diaries were also kept which captured the less formal feedback on the project
from conversations, team meetings, the day to day issues in implementation
and so on. These information sources were analysed qualitatively
to identify key themes and issues, and in the case of the questionnaires,
quantitatively to establish the relative strength of different opinions
among the staff teams.
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The overall number of goals set (in relation
to referral rate) was used as a measure of the extent of implementation.
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Quality of GAS goals and scales was established
through a study in which three raters made ratings on a number of different
dimensions of good practice in goals setting and scale construction. Agreement
statistics were calculated, and the pattern of agreements and disagreements
was also reviewed.
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The GAS data itself was also analysed statistically
to identify the pattern of outcomes obtained.
The team
The research was conducted by Vicki Hunt,
Melanie Chapman, Mark Burton (Manchester Learning Disability Partnership),
and David Reeves (Victoria University of Manchester). The evaluation
of GAS was part of the Department of Health’s Outcomes of Social Care for
Adults (OSCA) Research and Development Programme.
Contact: Mark Burton 0161
881 0911 ext. 180 email: mark.burton@mcr1.poptel.org.uk
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